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OUR WEBINARS

The International PPI Network runs a bi-monthly webinar series dedicated to the topic of PPI in health and social care research. We are pleased to be joined throughout the series by leading experts in this field, and you can find out more about each session and access the webinar recordings below. All sessions are freely open to everyone.

 

From 2019-2024 our webinars were run in collaboration with Cochrane. We are pleased to announce that from 2025 our webinars will now be held in collaboration with the National Institute for Health and Care Research UK. 

2025-26 WEBINAR SERIES

OUR LATEST WEBINAR

Patient and Public Involvement in Research in Brazil 

Prof. Egmar Longo - pysiotherapist, researcher and Professor at the Federal University of Paraiba, Brazil and Luciana Pereira of the Projeto Cura Institute have been at the forefront of the development of patient and public involvement in Brazil. In this webinar they give us a fascinating insight into how PPI has and continues to develop in Brazil, telling us about their past experiences and ongoing projects.

Patient and Public Involvement in Research in Ireland 

Claire Riordan (CURAM) and Edel Murphy (PPI Ignite Work) explain their work on embedding PPI in Research in Ireland

Embedding PPI in Organisations: The German Centre for Mental Health (DZPG) 

Silke Lipinksi and Isabel Dziobel explain how they created the PPI structure for the German Centre for Mental Health (DZPG). 

Citizen Science: The Isala Project

Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health.

OUR LATEST WEBINAR

Citizen Science: The Isala Project

Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health.

Measuring the Impact of PPI in Research

How do we assess the impact of patient and public involvement in research? Jennifer Mohammadi & Sophie Scott-Thorburn explain how the use of reflective sessions to assess impact can improve PPI practices. They then answer questions posed by our audience in a live Q&A session.

WEBINARS 2019-2024

Storytelling for impact: Creating a storytelling program for patient partners in research

Recorded in November 2024

Storytelling for impact: Creating a storytelling program for patient partners in research

Leah Getchell, MA, MSW, RSW: Anthropologist & Social Worker. Modality Coordinator for the Regional Renal Program, London, Ontario

Teresa Atkinson: Patient partner & Project Lead for the Kidney Wellness Hub, Kidney Foundation of Canada

HEAlth caRe needs of the Deaf (HEARD): Using community-based participatory research to address the healthcare access challenges of the Deaf community in Malaysia

Recorded in October 2024

Professor Uma Palanisamy: Professor of Biochemistry, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia

Studying Online
2nd edit_Learning Live PPI.png

Storytelling for impact: Creating a storytelling program for patient partners in research

Recorded in November 2024

Leah Getchell, MA, MSW, RSW: Anthropologist & Social Worker. Modality Coordinator for the Regional Renal Program, London, Ontario

Teresa Atkinson: Patient partner & Project Lead for the Kidney Wellness Hub, Kidney Foundation of Canada

Sign Language
2nd edit_Learning Live PPI.png

HEAlth caRe needs of the Deaf (HEARD): Using community-based participatory research to address the healthcare access challenges of the Deaf community in Malaysia

Recorded in October 2024

Professor Uma Palanisamy: Professor of Biochemistry, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia

Camera on a tripod
2nd edit_Learning Live PPI.png

Two sides of the camera: Collaboration, Co-creation and Co-production in public health research

Recorded in September 2024

Professor Lynn Hendricks: Associate Professor in the Division of Health Systems and Public Health, Faculty of Medicine and Health Sciences, Stellenbosch University

Dr Thaakirah Toefy: Medical doctor from Cape Town, South Africa

Mrs Rizqah Dollie: Applied Visual Anthropologist from Cape Town, South Africa

Aboriginal Australian Artist
2nd edit_Learning Live PPI.png

‘Let’s yarn about sleep’: Co-designing a movement for sleep health equity in First nations communities in Australia

Recorded in August 2024

Associate Professor Yaqoot Fatima: Principal Research Fellow, UQ Poche Centre for Indigenous Health, University of Queensland

Wayne Williams: Lecturer in Indigenous Health, Medical School (Rural Clinical School), Faculty of Medicine, University of Queensland

Doctor and Patient
2nd edit_Learning Live PPI.png

Diversity in Clinical Trials

Recorded in November 2023

Shaun Treweek: Professor of Health Services Research, Health Services Research Unit, University of Aberdeen

Makeida Stubbs: Clinical Trial Diversity Lead, Pfizer

Image by Chris Montgomery
2nd edit_Learning Live PPI.png

Shared learning: How to apply PPI in multinational and multi-group research

Recorded in October 2023

Mogens Horder: Professor at the Unit for Patient Perspective in Health Care and Research, Dept of Public Health, University of Southern Denmark

Alexandra Alves-Rodrigues: Invited Researcher, Dept of Public Health, University of Southern Denmark

Making Posters
2nd edit_Learning Live PPI.png

Research priority setting with patients and the public

Recorded in September 2023

Beccy Maeso: Executive Lead, James Lind Alliance (JLA)
Dr Zelalem Mengistu: Associate Professor of Obstetrics, Gynaecology and Urogynecology, University of Gondar, Ethiopia

Young People at a Workshop
2nd edit_Learning Live PPI.png

SPFT Youth PPI Café: A framework for the meaningful involvement of young people in mental health research

Recorded in August 2023

Abigail Thomson: PhD student & PPI consultant, Queen Mary University of London
Dr Sam Robertson: Sussex Partnership Foundation Trust 

Business Meeting
2nd edit_Learning Live PPI.png

Developing our international PPI evidence base through high quality reporting: The evolution and use of GRIPP2

Recorded in November 2021

Sophie Staniszewska: Professor of Patient and Public Involvement and Experiences of Care, Warwick Medical School, England
Richard Stephens: Patient Advocate

Man Painting a Wall
2nd edit_Learning Live PPI.png

Public Engagement and Involvement in Health Research: How well are we doing? Views from the global north vs the global south

Recorded in July 2020

Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute
Kati Turner: Survivor researcher, Population Health Research Institute, St George’s University of London
Dr Anastasia Koch: Co-founder of Eh!woza
Nabeel Petersen: Co-founder of the South African-based NPO the Pivot Collective

Crowd with Masks
2nd edit_Learning Live PPI.png

Working together to beat covid-19: engaging and involving patients and public (second webinar)

Recorded in June 2020

Professor Allison Tong: Principal Research Fellow, Sydney School of Public Health, The University of Sydney
Anne McKenzie: Senior Manager for Community Engagement,Telethon Kids Institute in Perth, Western Australia.
Dr Mary Chambers: Head of Public and Community Engagement, Oxford University Clinical Research Unit Vietnam.
Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute
Richard Morley: Cochrane's Consumer Engagement Officer.

Crowd with Masks
2nd edit_Learning Live PPI.png

Working together to beat covid-19: engaging and involving patients and public (first webinar)

Recorded in June 2020

Jeremy Taylor OBE: NIHR Director for Public Voice. 
Richard Morley: Cochrane's Consumer Engagement Officer.
Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute.
Maureen Smith: Chair, Cochrane’s Consumer Executive.

Youth Club Meeting
2nd edit_Learning Live PPI.png

No Choice of Outcomes About us Without us!

Recorded in February 2020

Paula Williamson: Professor of Biostatistics, Lead for the COMET Initiative
Bridget Young: Professor of Psychology & Co-Chair, COMET PoPPIE Working Group
Heather Bagley: COMET Initiative Patient & Public Involvement Co-ordinator
John Turner: Public co-chair of the PoPPIE Working Group
Maureen Smith: Patient Research Partner in a core outcome set study & public member, PoPPIE Working Group
Tess Harris: Chief Executive at Polycystic Kidney Disease Charity UK.

Nurse and Patient
2nd edit_Learning Live PPI.png

Experiences from implementation of PPI in healthcare research in Denmark 2009-2019

Recorded in February 2020

Mogens Hørder: Professor, MD, DMSC, Department of Public Health, University of Southern Denmark

Mother and Daughter
2nd edit_Learning Live PPI.png

Building trust and sharing power for co-creation in Aboriginal health research

Recorded in January 2020

Simone Sherriff: Project officer, Study of Environment on Aboriginal Resilience and Child Health (SEARCH)
Hilary Miller: Public health researcher, ReachOut Australia.

A group of women at a business meeting
2nd edit_Learning Live PPI.png

Public Participation Impact: the other PPI

Recorded in January 2020

Eddy Nason: Assistant Director, Ontario SPOR SUPPORT Unit
Emily Nicholas Angl: Director of Health Engagement and Communication, Reframe Health Lab

Collating Data
2nd edit_Learning Live PPI.png

Stakeholder Involvement in Evidence Synthesis

Recorded in November 2019

Dr Neal R Haddaway: Senior Research Fellow

Business Meeting
2nd edit_Learning Live PPI.png

Co-production in Action

Recorded in November 2019

Dr Gary Hickey: Senior Public Involvement Manager at INVOLVE, who leads on co-production.
Nathaniel Mills: Paediatric Programme Manager, NIHR Devices for Dignity MedTech Co-operative
Gemma Wheeler: Design Researcher, Lab4Living, Sheffield Hallam University

Business Handshake
2nd edit_Learning Live PPI.png

Patient and public involvement in research: What, why and how?

Recorded in August 2019

Dr Gary Hickey: Senior Public Involvement Manager at INVOLVE
Kati Turner: Researcher at the Population Health Research Institute at St George’s, University of London 

Studying Online
2nd edit_Learning Live PPI.png

Storytelling for impact: Creating a storytelling program for patient partners in research

Recorded in November 2024

Leah Getchell, MA, MSW, RSW: Anthropologist & Social Worker. Modality Coordinator for the Regional Renal Program, London, Ontario

Teresa Atkinson: Patient partner & Project Lead for the Kidney Wellness Hub, Kidney Foundation of Canada

Sign Language
2nd edit_Learning Live PPI.png

HEAlth caRe needs of the Deaf (HEARD): Using community-based participatory research to address the healthcare access challenges of the Deaf community in Malaysia

Recorded in October 2024

Professor Uma Palanisamy: Professor of Biochemistry, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia

Camera on a tripod
2nd edit_Learning Live PPI.png

Two sides of the camera: Collaboration, Co-creation and Co-production in public health research

Recorded in September 2024

Professor Lynn Hendricks: Associate Professor in the Division of Health Systems and Public Health, Faculty of Medicine and Health Sciences, Stellenbosch University

Dr Thaakirah Toefy: Medical doctor from Cape Town, South Africa

Mrs Rizqah Dollie: Applied Visual Anthropologist from Cape Town, South Africa

Aboriginal Australian Artist
2nd edit_Learning Live PPI.png

‘Let’s yarn about sleep’: Co-designing a movement for sleep health equity in First nations communities in Australia

Recorded in August 2024

Associate Professor Yaqoot Fatima: Principal Research Fellow, UQ Poche Centre for Indigenous Health, University of Queensland

Wayne Williams: Lecturer in Indigenous Health, Medical School (Rural Clinical School), Faculty of Medicine, University of Queensland

Doctor and Patient
2nd edit_Learning Live PPI.png

Diversity in Clinical Trials

Recorded in November 2023

Shaun Treweek: Professor of Health Services Research, Health Services Research Unit, University of Aberdeen

Makeida Stubbs: Clinical Trial Diversity Lead, Pfizer

Image by Chris Montgomery
2nd edit_Learning Live PPI.png

Shared learning: How to apply PPI in multinational and multi-group research

Recorded in October 2023

Mogens Horder: Professor at the Unit for Patient Perspective in Health Care and Research, Dept of Public Health, University of Southern Denmark

Alexandra Alves-Rodrigues: Invited Researcher, Dept of Public Health, University of Southern Denmark

Making Posters
2nd edit_Learning Live PPI.png

Research priority setting with patients and the public

Recorded in September 2023

Beccy Maeso: Executive Lead, James Lind Alliance (JLA)
Dr Zelalem Mengistu: Associate Professor of Obstetrics, Gynaecology and Urogynecology, University of Gondar, Ethiopia

Young People at a Workshop
2nd edit_Learning Live PPI.png

SPFT Youth PPI Café: A framework for the meaningful involvement of young people in mental health research

Recorded in August 2023

Abigail Thomson: PhD student & PPI consultant, Queen Mary University of London
Dr Sam Robertson: Sussex Partnership Foundation Trust 

Business Meeting
2nd edit_Learning Live PPI.png

Developing our international PPI evidence base through high quality reporting: The evolution and use of GRIPP2

Recorded in November 2021

Sophie Staniszewska: Professor of Patient and Public Involvement and Experiences of Care, Warwick Medical School, England
Richard Stephens: Patient Advocate

Man Painting a Wall
2nd edit_Learning Live PPI.png

Public Engagement and Involvement in Health Research: How well are we doing? Views from the global north vs the global south

Recorded in July 2020

Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute
Kati Turner: Survivor researcher, Population Health Research Institute, St George’s University of London
Dr Anastasia Koch: Co-founder of Eh!woza
Nabeel Petersen: Co-founder of the South African-based NPO the Pivot Collective

Crowd with Masks
2nd edit_Learning Live PPI.png

Working together to beat covid-19: engaging and involving patients and public (second webinar)

Recorded in June 2020

Professor Allison Tong: Principal Research Fellow, Sydney School of Public Health, The University of Sydney
Anne McKenzie: Senior Manager for Community Engagement,Telethon Kids Institute in Perth, Western Australia.
Dr Mary Chambers: Head of Public and Community Engagement, Oxford University Clinical Research Unit Vietnam.
Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute
Richard Morley: Cochrane's Consumer Engagement Officer.

Crowd with Masks
2nd edit_Learning Live PPI.png

Working together to beat covid-19: engaging and involving patients and public (first webinar)

Recorded in June 2020

Jeremy Taylor OBE: NIHR Director for Public Voice. 
Richard Morley: Cochrane's Consumer Engagement Officer.
Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute.
Maureen Smith: Chair, Cochrane’s Consumer Executive.

Youth Club Meeting
2nd edit_Learning Live PPI.png

No Choice of Outcomes About us Without us!

Recorded in February 2020

Paula Williamson: Professor of Biostatistics, Lead for the COMET Initiative
Bridget Young: Professor of Psychology & Co-Chair, COMET PoPPIE Working Group
Heather Bagley: COMET Initiative Patient & Public Involvement Co-ordinator
John Turner: Public co-chair of the PoPPIE Working Group
Maureen Smith: Patient Research Partner in a core outcome set study & public member, PoPPIE Working Group
Tess Harris: Chief Executive at Polycystic Kidney Disease Charity UK.

Nurse and Patient
2nd edit_Learning Live PPI.png

Experiences from implementation of PPI in healthcare research in Denmark 2009-2019

Recorded in February 2020

Mogens Hørder: Professor, MD, DMSC, Department of Public Health, University of Southern Denmark

Mother and Daughter
2nd edit_Learning Live PPI.png

Building trust and sharing power for co-creation in Aboriginal health research

Recorded in January 2020

Simone Sherriff: Project officer, Study of Environment on Aboriginal Resilience and Child Health (SEARCH)
Hilary Miller: Public health researcher, ReachOut Australia.

A group of women at a business meeting
2nd edit_Learning Live PPI.png

Public Participation Impact: the other PPI

Recorded in January 2020

Eddy Nason: Assistant Director, Ontario SPOR SUPPORT Unit
Emily Nicholas Angl: Director of Health Engagement and Communication, Reframe Health Lab

Collating Data
2nd edit_Learning Live PPI.png

Stakeholder Involvement in Evidence Synthesis

Recorded in November 2019

Dr Neal R Haddaway: Senior Research Fellow

Business Meeting
2nd edit_Learning Live PPI.png

Co-production in Action

Recorded in November 2019

Dr Gary Hickey: Senior Public Involvement Manager at INVOLVE, who leads on co-production.
Nathaniel Mills: Paediatric Programme Manager, NIHR Devices for Dignity MedTech Co-operative
Gemma Wheeler: Design Researcher, Lab4Living, Sheffield Hallam University

Business Handshake
2nd edit_Learning Live PPI.png

Patient and public involvement in research: What, why and how?

Recorded in August 2019

Dr Gary Hickey: Senior Public Involvement Manager at INVOLVE
Kati Turner: Researcher at the Population Health Research Institute at St George’s, University of London 

The purpose of these webinars is for sharing knowledge and learning. The views expressed in these webinars are those of the presenters and not necessarily those of the international PPI Network. 

INTERNATIONAL PATIENT AND PUBLIC INVOLVEMENT NETWORK

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