OUR WEBINARS

The International PPI Network runs a bi-monthly webinar series dedicated to the topic of PPI in health and social care research. We are pleased to be joined throughout the series by leading experts in this field, and you can find out more about each session and access the webinar recordings below. All sessions are freely open to everyone.
From 2019-2024 our webinars were run in collaboration with Cochrane. We are pleased to announce that from 2025 our webinars will now be held in collaboration with the National Institute for Health and Care Research UK.
2025-26 WEBINAR SERIES
OUR LATEST WEBINAR
Patient and Public Involvement in Research in Brazil
Prof. Egmar Longo - pysiotherapist, researcher and Professor at the Federal University of Paraiba, Brazil and Luciana Pereira of the Projeto Cura Institute have been at the forefront of the development of patient and public involvement in Brazil. In this webinar they give us a fascinating insight into how PPI has and continues to develop in Brazil, telling us about their past experiences and ongoing projects.
Patient and Public Involvement in Research in Ireland
Claire Riordan (CURAM) and Edel Murphy (PPI Ignite Work) explain their work on embedding PPI in Research in Ireland
Embedding PPI in Organisations: The German Centre for Mental Health (DZPG)
Silke Lipinksi and Isabel Dziobel explain how they created the PPI structure for the German Centre for Mental Health (DZPG).
Citizen Science: The Isala Project
Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health.
OUR LATEST WEBINAR
Citizen Science: The Isala Project
Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health.
Measuring the Impact of PPI in Research
How do we assess the impact of patient and public involvement in research? Jennifer Mohammadi & Sophie Scott-Thorburn explain how the use of reflective sessions to assess impact can improve PPI practices. They then answer questions posed by our audience in a live Q&A session.
WEBINARS 2019-2024

Storytelling for impact: Creating a storytelling program for patient partners in research
Recorded in November 2024
Storytelling for impact: Creating a storytelling program for patient partners in research
Leah Getchell, MA, MSW, RSW: Anthropologist & Social Worker. Modality Coordinator for the Regional Renal Program, London, Ontario
Teresa Atkinson: Patient partner & Project Lead for the Kidney Wellness Hub, Kidney Foundation of Canada
HEAlth caRe needs of the Deaf (HEARD): Using community-based participatory research to address the healthcare access challenges of the Deaf community in Malaysia
Recorded in October 2024
Professor Uma Palanisamy: Professor of Biochemistry, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia


Storytelling for impact: Creating a storytelling program for patient partners in research
Recorded in November 2024
Leah Getchell, MA, MSW, RSW: Anthropologist & Social Worker. Modality Coordinator for the Regional Renal Program, London, Ontario
Teresa Atkinson: Patient partner & Project Lead for the Kidney Wellness Hub, Kidney Foundation of Canada


HEAlth caRe needs of the Deaf (HEARD): Using community-based participatory research to address the healthcare access challenges of the Deaf community in Malaysia
Recorded in October 2024
Professor Uma Palanisamy: Professor of Biochemistry, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia


Two sides of the camera: Collaboration, Co-creation and Co-production in public health research
Recorded in September 2024
Professor Lynn Hendricks: Associate Professor in the Division of Health Systems and Public Health, Faculty of Medicine and Health Sciences, Stellenbosch University
Dr Thaakirah Toefy: Medical doctor from Cape Town, South Africa
Mrs Rizqah Dollie: Applied Visual Anthropologist from Cape Town, South Africa


‘Let’s yarn about sleep’: Co-designing a movement for sleep health equity in First nations communities in Australia
Recorded in August 2024
Associate Professor Yaqoot Fatima: Principal Research Fellow, UQ Poche Centre for Indigenous Health, University of Queensland
Wayne Williams: Lecturer in Indigenous Health, Medical School (Rural Clinical School), Faculty of Medicine, University of Queensland


Shared learning: How to apply PPI in multinational and multi-group research
Recorded in October 2023
Mogens Horder: Professor at the Unit for Patient Perspective in Health Care and Research, Dept of Public Health, University of Southern Denmark
Alexandra Alves-Rodrigues: Invited Researcher, Dept of Public Health, University of Southern Denmark


Public Engagement and Involvement in Health Research: How well are we doing? Views from the global north vs the global south
Recorded in July 2020
Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute
Kati Turner: Survivor researcher, Population Health Research Institute, St George’s University of London
Dr Anastasia Koch: Co-founder of Eh!woza
Nabeel Petersen: Co-founder of the South African-based NPO the Pivot Collective


Working together to beat covid-19: engaging and involving patients and public (second webinar)
Recorded in June 2020
Professor Allison Tong: Principal Research Fellow, Sydney School of Public Health, The University of Sydney
Anne McKenzie: Senior Manager for Community Engagement,Telethon Kids Institute in Perth, Western Australia.
Dr Mary Chambers: Head of Public and Community Engagement, Oxford University Clinical Research Unit Vietnam.
Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute
Richard Morley: Cochrane's Consumer Engagement Officer.


Working together to beat covid-19: engaging and involving patients and public (first webinar)
Recorded in June 2020
Jeremy Taylor OBE: NIHR Director for Public Voice.
Richard Morley: Cochrane's Consumer Engagement Officer.
Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute.
Maureen Smith: Chair, Cochrane’s Consumer Executive.


No Choice of Outcomes About us Without us!
Recorded in February 2020
Paula Williamson: Professor of Biostatistics, Lead for the COMET Initiative
Bridget Young: Professor of Psychology & Co-Chair, COMET PoPPIE Working Group
Heather Bagley: COMET Initiative Patient & Public Involvement Co-ordinator
John Turner: Public co-chair of the PoPPIE Working Group
Maureen Smith: Patient Research Partner in a core outcome set study & public member, PoPPIE Working Group
Tess Harris: Chief Executive at Polycystic Kidney Disease Charity UK.


Co-production in Action
Recorded in November 2019
Dr Gary Hickey: Senior Public Involvement Manager at INVOLVE, who leads on co-production.
Nathaniel Mills: Paediatric Programme Manager, NIHR Devices for Dignity MedTech Co-operative
Gemma Wheeler: Design Researcher, Lab4Living, Sheffield Hallam University


Storytelling for impact: Creating a storytelling program for patient partners in research
Recorded in November 2024
Leah Getchell, MA, MSW, RSW: Anthropologist & Social Worker. Modality Coordinator for the Regional Renal Program, London, Ontario
Teresa Atkinson: Patient partner & Project Lead for the Kidney Wellness Hub, Kidney Foundation of Canada


HEAlth caRe needs of the Deaf (HEARD): Using community-based participatory research to address the healthcare access challenges of the Deaf community in Malaysia
Recorded in October 2024
Professor Uma Palanisamy: Professor of Biochemistry, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia


Two sides of the camera: Collaboration, Co-creation and Co-production in public health research
Recorded in September 2024
Professor Lynn Hendricks: Associate Professor in the Division of Health Systems and Public Health, Faculty of Medicine and Health Sciences, Stellenbosch University
Dr Thaakirah Toefy: Medical doctor from Cape Town, South Africa
Mrs Rizqah Dollie: Applied Visual Anthropologist from Cape Town, South Africa


‘Let’s yarn about sleep’: Co-designing a movement for sleep health equity in First nations communities in Australia
Recorded in August 2024
Associate Professor Yaqoot Fatima: Principal Research Fellow, UQ Poche Centre for Indigenous Health, University of Queensland
Wayne Williams: Lecturer in Indigenous Health, Medical School (Rural Clinical School), Faculty of Medicine, University of Queensland


Shared learning: How to apply PPI in multinational and multi-group research
Recorded in October 2023
Mogens Horder: Professor at the Unit for Patient Perspective in Health Care and Research, Dept of Public Health, University of Southern Denmark
Alexandra Alves-Rodrigues: Invited Researcher, Dept of Public Health, University of Southern Denmark


Public Engagement and Involvement in Health Research: How well are we doing? Views from the global north vs the global south
Recorded in July 2020
Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute
Kati Turner: Survivor researcher, Population Health Research Institute, St George’s University of London
Dr Anastasia Koch: Co-founder of Eh!woza
Nabeel Petersen: Co-founder of the South African-based NPO the Pivot Collective


Working together to beat covid-19: engaging and involving patients and public (second webinar)
Recorded in June 2020
Professor Allison Tong: Principal Research Fellow, Sydney School of Public Health, The University of Sydney
Anne McKenzie: Senior Manager for Community Engagement,Telethon Kids Institute in Perth, Western Australia.
Dr Mary Chambers: Head of Public and Community Engagement, Oxford University Clinical Research Unit Vietnam.
Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute
Richard Morley: Cochrane's Consumer Engagement Officer.


Working together to beat covid-19: engaging and involving patients and public (first webinar)
Recorded in June 2020
Jeremy Taylor OBE: NIHR Director for Public Voice.
Richard Morley: Cochrane's Consumer Engagement Officer.
Dr Gary Hickey: Senior Public Involvement Manager, Wessex Institute.
Maureen Smith: Chair, Cochrane’s Consumer Executive.


No Choice of Outcomes About us Without us!
Recorded in February 2020
Paula Williamson: Professor of Biostatistics, Lead for the COMET Initiative
Bridget Young: Professor of Psychology & Co-Chair, COMET PoPPIE Working Group
Heather Bagley: COMET Initiative Patient & Public Involvement Co-ordinator
John Turner: Public co-chair of the PoPPIE Working Group
Maureen Smith: Patient Research Partner in a core outcome set study & public member, PoPPIE Working Group
Tess Harris: Chief Executive at Polycystic Kidney Disease Charity UK.


Co-production in Action
Recorded in November 2019
Dr Gary Hickey: Senior Public Involvement Manager at INVOLVE, who leads on co-production.
Nathaniel Mills: Paediatric Programme Manager, NIHR Devices for Dignity MedTech Co-operative
Gemma Wheeler: Design Researcher, Lab4Living, Sheffield Hallam University
The purpose of these webinars is for sharing knowledge and learning. The views expressed in these webinars are those of the presenters and not necessarily those of the international PPI Network.








